sosdesmoide (Instagram)

Pique-niques à Saint-Cloud et à Nancy dimanche prochain pour toutes les personnes concernées ou intéressées par la tumeur desmoïde. Si vous souhaitez vous aussi organiser un pique nique dans une autre ville, faites le nous savoir ?!
#sosdesmoïde #tumeurdesmoïde #association #maladierare #solidarité #recherchemedicale #entraide #rencontreamicale #romprelisolement #desmoidtumor #desmoid #saintcloud #nancy @villedesaintcloud @ville_de_nancy @domainenationaldesaintcloud

desmoidfoundation (Instagram)

* DESMOID FOUNDATION PHOTO CONTEST * 📸 ..Our goal? Arriving all over Italy with our posters, and we are succeeding thanks to you!

Today we are in the wonderful Piazza del Campo in Siena 🐎 to remind you that you can give us your 5X1000 by entering the Tax Code 97833170158 in the tax return ... Thanks ❤️ #desmoid #desmoidtumor #desmoidian

desmoidcanada (Instagram)

Check out Conquer Cancer ASCO Foundation —Advancing Clinical Research!

https://www.conquer.org/advancing-clinical-research

sosdesmoide (Instagram)

Dimanche 9 juin, retrouvez Joëlle et d'autres amis desmoïdiens pour un pique nique au domaine national de Saint-Cloud ! L'occasion de se rencontrer, de partager et de discuter dans un cadre et une ambiance musicale sympas. Venez nombreux !!! #sosdesmoïde #tumeurdesmoïde #association #maladierare #solidarité #recherchemedicale #entraide #rencontreamicale #romprelisolement #desmoidtumor #desmoid #saintcloud #domainenationaldesaintcloud #concertetjeuxdeau @alliance_maladies_rares @eurordis @liguecontrelecancer @villedesaintcloud
@domainenationaldesaintcloud @desmoidfoundation @desmoidtumor_

desmoidcanada (Instagram)

We encourage all Canadian Desmoid patients and your families, to join our Canadian Desmoid Facebook Support Group!

The DFC support network is here for you, and we hope you know you are not alone! ♥️ The support group allows you to; talk with other Desmoid patients, share your personal experiences & stories and we are always keeping you informed on the latest treatments, trials & new research initiatives.

Make sure to join our Canadian support network and be part of our Canadian Desmoid family!
Check us out on Facebook: Desmoid Tumour Foundation Of Canada and join today! 🇨🇦
#DFC #DTRF #desmoidtumours #raredisease #notalone #canadian #supportgroup #desmoidcommunity

sosdesmoide (Instagram)

Ce week-end, Joëlle et Lucas font une vente de leurs articles @msaintcloud et reverseront une partie de leurs bénéfices à SOS Desmoïde. Et si vous aussi, vous releviez le défi SOS Desmoïde ?@msaintcloud@defi#tumeur #alliancemaladiesrares @alliance_maladies_rares @sosdesmoide

desmoidcanada (Instagram)

The DFC team is excited to announce that, our 3rd Annual Fundraising Event will be held on Thursday May 2nd!
Make sure to SAVE THE DATE! We will provide you with more details in the upcoming weeks!
Get ready for some amazing live entertainment and yummy food 🎉Looking forward to seeing you all at the event!
#fundraising #event #savethedate #desmoidtumours #raisingawareness #community

sosdesmoide (Instagram)

En participant au pique nique le 9 juin à Nancy, vous aurez peut être la chance de voir Delphine, la présidente de l'association SOS Desmoïde, danser un bon rock and roll comme l'an dernier! 😂
Rejoignez nous pour un beau moment de partage...
#sosdesmoïde #journéeamicale #nancy #tumeurdesmoïde #association #maladierare #solidarité #recherchemedicale #don #maladiesrares #desmoid #desmoidtumor @alliance_maladies_rares @eurordis @liguecontrelecancer

tumor_desmoide (Instagram)

Seguinos nos unindo com o propósito de ter sempre mais informações ! 💜
#fibromatose #fibromatosis #desmoidtumor #tumordesmoide #famíliatumordesmoide #sempreunidos #tumordesmoidebrasil #desmoidtumorbrazil

tumor_desmoide (Instagram)

Sabe o que é PICC?
#fibromatose #fibromatosis #desmoidtumor #tumordesmoide #famíliatumordesmoide #sempreunidos #tumordesmoidebrasil #desmoidtumorbrazil

tumor_desmoide (Instagram)

Seguimos confiantes na luta diária do TD! Família sempre unida #desmoide
#fibromatose #fibromatosis #desmoidtumor #tumordesmoide #famíliatumordesmoide #sempreunidos #tumordesmoidebrasil #desmoidtumorbrazil

tumor_desmoide (Instagram)

Você usa ou vai usar?
#fibromatose #fibromatosis #desmoidtumor #tumordesmoide #famíliatumordesmoide #sempreunidos #tumordesmoidebrasil #desmoidtumorbrazi

tumor_desmoide (Instagram)

Confiamos sempre🙏🏻. Quando descobrimos um problema de saúde, ficamos chateados, confusos, assustados. Mas levamos conosco e buscamos no grupo, apoio necessário para seguirmos confiando! Vai dar tudo certo🙏🏻 #fibromatose #fibromatosis #desmoidtumor #tumordesmoide #famíliatumordesmoide #sempreunidos #tumordesmoidebrasil #desmoidtumorbrazil

tumor_desmoide (Instagram)

Cada dia , um dia! Paciência sempre ! Familía TD unida sempre, por um mundo melhor !
#fibromatose #fibromatosis #desmoidtumor #tumordesmoide #famíliatumordesmoide #sempreunidos #tumordesmoidebrasil #desmoidtumorbrazil

tumor_desmoide (Instagram)

Busque a felicidade apesar das dificuldades.
#fibromatose #fibromatosis #desmoidtumor #tumordesmoide #famíliatumordesmoide #sempreunidos #tumordesmoidebrasil #desmoidtumorbrazil

tumor_desmoide (Instagram)

Tirar um tempo pra caminhar só traz benefícios.
#fibromatose #fibromatosis #desmoidtumor #tumordesmoide #famíliatumordesmoide #sempreunidos #tumordesmoidebrasil #desmoidtumorbrazil

tumor_desmoide (Instagram)

Busque qualidade de vida sempre.
#fibromatose #fibromatosis #desmoidtumor #tumordesmoide #famíliatumordesmoide #sempreunidos #tumordesmoidebrasil #desmoidtumorbrazil

tumor_desmoide (Instagram)

Vamos andar de bike?
#fibromatose #fibromatosis #desmoidtumor #tumordesmoide #famíliatumordesmoide #sempreunidos #tumordesmoidebrasil #desmoidtumorbrazil

tumor_desmoide (Instagram)

Práticar esportes é sempre bom.
#fibromatose #fibromatosis #desmoidtumor #tumordesmoide #famíliatumordesmoide #sempreunidos #tumordesmoidebrasil #desmoidtumorbrazil

tumor_desmoide (Instagram)

É impotânte buscar uma vida saudável.
#fibromatose #fibromatosis #desmoidtumor #tumordesmoide #famíliatumordesmoide #sempreunidos #tumordesmoidebrasil #desmoidtumorbrazil