desmoidfoundation (Instagram)

If you need support...contact us! ☎️ #desmoidtumor #desmoidian

sosdesmoide (Instagram)

Pensez à adhérer : https://www.sos-desmoide.asso.fr/billetterie/offre/93231-m-adherez-a-sos-desmoide?header=%2Fpage%2F440289-adherer @alliance_maladies_rares @sosdesmoide #tumeur #alliancemaladiesrares #adherer #don

desmoidcanada (Instagram)

Are you ready for this years 3rd annual fundraising event! Better than ever, this years event “Play It Forward For A Cure” will have awesome live entertainment!
We have exciting live auction getaways and some fabulous new silent auction items! Make sure to get your TICKETS!! Early bird tickets end in 10 days (March 15), get yours today. 🇨🇦🎼🎤 Here is the link to get your tickets:
https://www.canadahelps.org/en/charities/desmoid-tumour-foundation-of-canada/events/play-it-forward/

We cannot wait to see you all on May 2, 2019!
#DFC #desmoidcanada #desmoidtumours
#raredisease #3rdannualevent #fundraising #raiseawareness #supportdesmoids #PlayItForwardForACure

desmoidfoundation (Instagram)

This is us. We are few: every year 2 people out of a million discover they have a #desmoidtumor and join us.

This is us, we have a Rare Tumor: men and women who have in common the deep and courageous gaze of those who want to get up and react. "Strangers" who a month ago had the opportunity to meet each other and discover a FAMILY. The courage to talk about oneself, exposing the lived, the fears, the physical and emotional pain.
This is Us. Who, with a smile and with tears, live the Desmoid Tumor every day. Or his heavy legacy.

#desmoidian #desmoidtumor

desmoidcanada (Instagram)

The DFC invites you all to join us, for our 3rd Annual Fundraising Event! 🎉🎤 On May 2, 2019! “Play It Forward For A Cure”, will have live musical entertainment. Featuring, Blues Soloist -Shakura S’Aida and a band from Hamilton/Burlington -Slow Monday! We will have great live auction getaways and awesome silent auction items.

We hope that you can make it! If not, please donate and help us raise the funds needed to further fund current and new research initiatives.
New this year we have early bird tickets!! Make sure to get yours by March 15th! Tickets are available here:
https://www.canadahelps.org/en/charities/desmoid-tumour-foundation-of-canada/events/play-it-forward/

All your support continues to make a difference, we are seeing tangible results already! We look forward to seeing you all on May 2nd!
#desmoidtumours #raredisease #fundraisingevent
#desmoidcommunity #awareness #desmoidcanada

sosdesmoide (Instagram)

Pique-niques à Saint-Cloud et à Nancy dimanche prochain pour toutes les personnes concernées ou intéressées par la tumeur desmoïde. Si vous souhaitez vous aussi organiser un pique nique dans une autre ville, faites le nous savoir ?!
#sosdesmoïde #tumeurdesmoïde #association #maladierare #solidarité #recherchemedicale #entraide #rencontreamicale #romprelisolement #desmoidtumor #desmoid #saintcloud #nancy @villedesaintcloud @ville_de_nancy @domainenationaldesaintcloud

desmoidfoundation (Instagram)

* DESMOID FOUNDATION PHOTO CONTEST * 📸 ..Our goal? Arriving all over Italy with our posters, and we are succeeding thanks to you!

Today we are in the wonderful Piazza del Campo in Siena 🐎 to remind you that you can give us your 5X1000 by entering the Tax Code 97833170158 in the tax return ... Thanks ❤️ #desmoid #desmoidtumor #desmoidian

desmoidcanada (Instagram)

Check out Conquer Cancer ASCO Foundation —Advancing Clinical Research!

https://www.conquer.org/advancing-clinical-research

sosdesmoide (Instagram)

Dimanche 9 juin, retrouvez Joëlle et d'autres amis desmoïdiens pour un pique nique au domaine national de Saint-Cloud ! L'occasion de se rencontrer, de partager et de discuter dans un cadre et une ambiance musicale sympas. Venez nombreux !!! #sosdesmoïde #tumeurdesmoïde #association #maladierare #solidarité #recherchemedicale #entraide #rencontreamicale #romprelisolement #desmoidtumor #desmoid #saintcloud #domainenationaldesaintcloud #concertetjeuxdeau @alliance_maladies_rares @eurordis @liguecontrelecancer @villedesaintcloud
@domainenationaldesaintcloud @desmoidfoundation @desmoidtumor_

desmoidcanada (Instagram)

We encourage all Canadian Desmoid patients and your families, to join our Canadian Desmoid Facebook Support Group!

The DFC support network is here for you, and we hope you know you are not alone! ♥️ The support group allows you to; talk with other Desmoid patients, share your personal experiences & stories and we are always keeping you informed on the latest treatments, trials & new research initiatives.

Make sure to join our Canadian support network and be part of our Canadian Desmoid family!
Check us out on Facebook: Desmoid Tumour Foundation Of Canada and join today! 🇨🇦
#DFC #DTRF #desmoidtumours #raredisease #notalone #canadian #supportgroup #desmoidcommunity

sosdesmoide (Instagram)

Ce week-end, Joëlle et Lucas font une vente de leurs articles @msaintcloud et reverseront une partie de leurs bénéfices à SOS Desmoïde. Et si vous aussi, vous releviez le défi SOS Desmoïde ?@msaintcloud@defi#tumeur #alliancemaladiesrares @alliance_maladies_rares @sosdesmoide

desmoidcanada (Instagram)

The DFC team is excited to announce that, our 3rd Annual Fundraising Event will be held on Thursday May 2nd!
Make sure to SAVE THE DATE! We will provide you with more details in the upcoming weeks!
Get ready for some amazing live entertainment and yummy food 🎉Looking forward to seeing you all at the event!
#fundraising #event #savethedate #desmoidtumours #raisingawareness #community

sosdesmoide (Instagram)

En participant au pique nique le 9 juin à Nancy, vous aurez peut être la chance de voir Delphine, la présidente de l'association SOS Desmoïde, danser un bon rock and roll comme l'an dernier! 😂
Rejoignez nous pour un beau moment de partage...
#sosdesmoïde #journéeamicale #nancy #tumeurdesmoïde #association #maladierare #solidarité #recherchemedicale #don #maladiesrares #desmoid #desmoidtumor @alliance_maladies_rares @eurordis @liguecontrelecancer

tumor_desmoide (Instagram)

Seguinos nos unindo com o propósito de ter sempre mais informações ! 💜
#fibromatose #fibromatosis #desmoidtumor #tumordesmoide #famíliatumordesmoide #sempreunidos #tumordesmoidebrasil #desmoidtumorbrazil

tumor_desmoide (Instagram)

Sabe o que é PICC?
#fibromatose #fibromatosis #desmoidtumor #tumordesmoide #famíliatumordesmoide #sempreunidos #tumordesmoidebrasil #desmoidtumorbrazil

tumor_desmoide (Instagram)

Seguimos confiantes na luta diária do TD! Família sempre unida #desmoide
#fibromatose #fibromatosis #desmoidtumor #tumordesmoide #famíliatumordesmoide #sempreunidos #tumordesmoidebrasil #desmoidtumorbrazil

tumor_desmoide (Instagram)

Você usa ou vai usar?
#fibromatose #fibromatosis #desmoidtumor #tumordesmoide #famíliatumordesmoide #sempreunidos #tumordesmoidebrasil #desmoidtumorbrazi

tumor_desmoide (Instagram)

Confiamos sempre🙏🏻. Quando descobrimos um problema de saúde, ficamos chateados, confusos, assustados. Mas levamos conosco e buscamos no grupo, apoio necessário para seguirmos confiando! Vai dar tudo certo🙏🏻 #fibromatose #fibromatosis #desmoidtumor #tumordesmoide #famíliatumordesmoide #sempreunidos #tumordesmoidebrasil #desmoidtumorbrazil

tumor_desmoide (Instagram)

Cada dia , um dia! Paciência sempre ! Familía TD unida sempre, por um mundo melhor !
#fibromatose #fibromatosis #desmoidtumor #tumordesmoide #famíliatumordesmoide #sempreunidos #tumordesmoidebrasil #desmoidtumorbrazil

tumor_desmoide (Instagram)

Busque a felicidade apesar das dificuldades.
#fibromatose #fibromatosis #desmoidtumor #tumordesmoide #famíliatumordesmoide #sempreunidos #tumordesmoidebrasil #desmoidtumorbrazil