desmoidfoundation (Instagram)
She is Teresa.
She’s a patient of the Desmoid foundation Young: a section of the association dedicated entirely to children.
But first of all she is a lioness and a fighter.
The Desmoid Foundation is a big family and we are all here to cheer on her and wish her to get back into shape soon! Be strong Teresa❤️ #desmoidtumor #desmoidian
She is Teresa.
She’s a patient of the Desmoid foundation Young: a section of the association dedicated entirely to children.
But first of all she is a lioness and a fighter.
The Desmoid Foundation is a big family and we are all here to cheer on her and wish her to get back into shape soon! Be strong Teresa❤️ #desmoidtumor #desmoidian
sosdesmoide (Instagram)
#tumeur #alliancemaladiesrares @alliance_maladies_rares @sosdesmoide #forum#sarcome
#tumeur #alliancemaladiesrares @alliance_maladies_rares @sosdesmoide #forum#sarcome
desmoidfoundation (Instagram)
They are some of our super guys at work, designing the * Desmoid Foundation Young * section: made up of younger patients with desmoid tumor.
This will be a dedicated space where they can express all their emotions, fears and ideas!😎 This is why we care about this YOUNG section.
Because we believe that at 20, every girl and boy should think only about her/his own future and how to break the world.
They should not face a tumor.
But if they have to do it, better be in good company! 💪❤️ #desmoidtumor #desmoidian
They are some of our super guys at work, designing the * Desmoid Foundation Young * section: made up of younger patients with desmoid tumor.
This will be a dedicated space where they can express all their emotions, fears and ideas!😎 This is why we care about this YOUNG section.
Because we believe that at 20, every girl and boy should think only about her/his own future and how to break the world.
They should not face a tumor.
But if they have to do it, better be in good company! 💪❤️ #desmoidtumor #desmoidian
desmoidcanada (Instagram)
Are you ready for this years live and silent auction?
We have awesome new live auction getaways and great silent auction items, that could be yours!! Check out this years auction items here:
https://desmoidcanada.com/auction-items/2019-auction-items/
Get your tickets today! WE need your support! Looking forward to seeing you on May 2nd!
https://www.canadahelps.org/en/charities/desmoid-tumour-foundation-of-canada/events/play-it-forward/
Are you ready for this years live and silent auction?
We have awesome new live auction getaways and great silent auction items, that could be yours!! Check out this years auction items here:
https://desmoidcanada.com/auction-items/2019-auction-items/
Get your tickets today! WE need your support! Looking forward to seeing you on May 2nd!
https://www.canadahelps.org/en/charities/desmoid-tumour-foundation-of-canada/events/play-it-forward/
desmoidfoundation (Instagram)
Here we are:
new logo
new design
always the same determination 💪
Thanks to #kirweb 😘
Here we are:
new logo
new design
always the same determination 💪
Thanks to #kirweb 😘
desmoidcanada (Instagram)
Are you ready to rock to some great cover classics from the 70’s and 80’s with Slow Monday and be amazed by Canada’s finest Blues Soloist Shakura S’Aida?
Make sure to get your tickets to our 3rd annual DFC fundraising event PLAY IT FORWARD FOR A CURE, held on May 2nd at Revival Bar, Toronto.
Your participation is needed to raise funds for Desmoid Tumour Research for a cure! ♥️🎉 Get your tickets or donate here:
https://www.canadahelps.org/en/charities/desmoid-tumour-foundation-of-canada/events/play-it-forward/
Are you ready to rock to some great cover classics from the 70’s and 80’s with Slow Monday and be amazed by Canada’s finest Blues Soloist Shakura S’Aida?
Make sure to get your tickets to our 3rd annual DFC fundraising event PLAY IT FORWARD FOR A CURE, held on May 2nd at Revival Bar, Toronto.
Your participation is needed to raise funds for Desmoid Tumour Research for a cure! ♥️🎉 Get your tickets or donate here:
https://www.canadahelps.org/en/charities/desmoid-tumour-foundation-of-canada/events/play-it-forward/
desmoidfoundation (Instagram)
Trovare una cura. Creare centri di riferimento in tutta Italia. Supportare i pazienti durante il loro percorso diagnostico e terapeutico.
Questo è il nostro obiettivo.
AIUTACI DONANDO IL tuo 5X1000 alla Desmoid Foundation ONLUS 🤝
È molto semplice: non costa nulla.
Basta apporre una FIRMA sulla tua DICHIARAZIONE DEI REDDITI, nell’apposito riquadro:
”Sostegno del volontariato e delle altre Fondazioni non lucrative di utilità sociale, delle Associazioni di promozione sociale e delle Associazioni e fondazioni riconosciute che operano nei settori di cui all’art. 10, C. 1, lett. A del D.Lgs. n. 460ndel 1997”
Indicando il nostro CODICE FISCALE:
97833170158
Grazie ❤️
Trovare una cura. Creare centri di riferimento in tutta Italia. Supportare i pazienti durante il loro percorso diagnostico e terapeutico.
Questo è il nostro obiettivo.
AIUTACI DONANDO IL tuo 5X1000 alla Desmoid Foundation ONLUS 🤝
È molto semplice: non costa nulla.
Basta apporre una FIRMA sulla tua DICHIARAZIONE DEI REDDITI, nell’apposito riquadro:
”Sostegno del volontariato e delle altre Fondazioni non lucrative di utilità sociale, delle Associazioni di promozione sociale e delle Associazioni e fondazioni riconosciute che operano nei settori di cui all’art. 10, C. 1, lett. A del D.Lgs. n. 460ndel 1997”
Indicando il nostro CODICE FISCALE:
97833170158
Grazie ❤️
sosdesmoide (Instagram)
En raison de la pluie annoncée, le pique nique prévu au parc de Saint-Cloud aujourd'hui est annulé... Mais ce n'est que partie remise !☔☔☔☔☔
#sosdesmoïde #tumeurdesmoïde #association #maladierare #solidarité #entraide #maladiesrares #recherchemedicale #desmoidtumor #desmoid #saintcloud #domainenationaldesaintcloud #piquenique
En raison de la pluie annoncée, le pique nique prévu au parc de Saint-Cloud aujourd'hui est annulé... Mais ce n'est que partie remise !☔☔☔☔☔
#sosdesmoïde #tumeurdesmoïde #association #maladierare #solidarité #entraide #maladiesrares #recherchemedicale #desmoidtumor #desmoid #saintcloud #domainenationaldesaintcloud #piquenique
desmoidcanada (Instagram)
It’s time to get your TICKETS for our 3rd annual fundraising event, Play It Forward for A Cure!
New this year we have LIVE ENTERTAINMENT! Featuring Shakura S'aida a Canadian Blues Soloist and Slow Monday a Rock Band covering the classics from the 70's & 80's.
Get ready for some awesome live auction getaways, fun silent auction items, great food and drinks all night long. You will be sure to have a great time!
We need your support! Please get your tickets TODAY... and support all Canadians suffering with Desmoid Tumours.
Looking forward to seeing you all on Thursday May 2, 2019 and together we are one step closer to finding a cure ♥️🎉 Tickets Available Here:
https://www.canadahelps.org/en/charities/desmoid-tumour-foundation-of-canada/events/play-it-forward/
It’s time to get your TICKETS for our 3rd annual fundraising event, Play It Forward for A Cure!
New this year we have LIVE ENTERTAINMENT! Featuring Shakura S'aida a Canadian Blues Soloist and Slow Monday a Rock Band covering the classics from the 70's & 80's.
Get ready for some awesome live auction getaways, fun silent auction items, great food and drinks all night long. You will be sure to have a great time!
We need your support! Please get your tickets TODAY... and support all Canadians suffering with Desmoid Tumours.
Looking forward to seeing you all on Thursday May 2, 2019 and together we are one step closer to finding a cure ♥️🎉 Tickets Available Here:
https://www.canadahelps.org/en/charities/desmoid-tumour-foundation-of-canada/events/play-it-forward/
sosdesmoide (Instagram)
Pensez à adhérer : https://www.sos-desmoide.asso.fr/billetterie/offre/93231-m-adherez-a-sos-desmoide?header=%2Fpage%2F440289-adherer @alliance_maladies_rares @sosdesmoide #tumeur #alliancemaladiesrares #adherer #don
Pensez à adhérer : https://www.sos-desmoide.asso.fr/billetterie/offre/93231-m-adherez-a-sos-desmoide?header=%2Fpage%2F440289-adherer @alliance_maladies_rares @sosdesmoide #tumeur #alliancemaladiesrares #adherer #don
desmoidcanada (Instagram)
Are you ready for this years 3rd annual fundraising event! Better than ever, this years event “Play It Forward For A Cure” will have awesome live entertainment!
We have exciting live auction getaways and some fabulous new silent auction items! Make sure to get your TICKETS!! Early bird tickets end in 10 days (March 15), get yours today. 🇨🇦🎼🎤 Here is the link to get your tickets:
https://www.canadahelps.org/en/charities/desmoid-tumour-foundation-of-canada/events/play-it-forward/
We cannot wait to see you all on May 2, 2019!
#DFC #desmoidcanada #desmoidtumours
#raredisease #3rdannualevent #fundraising #raiseawareness #supportdesmoids #PlayItForwardForACure
Are you ready for this years 3rd annual fundraising event! Better than ever, this years event “Play It Forward For A Cure” will have awesome live entertainment!
We have exciting live auction getaways and some fabulous new silent auction items! Make sure to get your TICKETS!! Early bird tickets end in 10 days (March 15), get yours today. 🇨🇦🎼🎤 Here is the link to get your tickets:
https://www.canadahelps.org/en/charities/desmoid-tumour-foundation-of-canada/events/play-it-forward/
We cannot wait to see you all on May 2, 2019!
#DFC #desmoidcanada #desmoidtumours
#raredisease #3rdannualevent #fundraising #raiseawareness #supportdesmoids #PlayItForwardForACure
desmoidfoundation (Instagram)
This is us. We are few: every year 2 people out of a million discover they have a #desmoidtumor and join us.
This is us, we have a Rare Tumor: men and women who have in common the deep and courageous gaze of those who want to get up and react. "Strangers" who a month ago had the opportunity to meet each other and discover a FAMILY. The courage to talk about oneself, exposing the lived, the fears, the physical and emotional pain.
This is Us. Who, with a smile and with tears, live the Desmoid Tumor every day. Or his heavy legacy.
#desmoidian #desmoidtumor
This is us. We are few: every year 2 people out of a million discover they have a #desmoidtumor and join us.
This is us, we have a Rare Tumor: men and women who have in common the deep and courageous gaze of those who want to get up and react. "Strangers" who a month ago had the opportunity to meet each other and discover a FAMILY. The courage to talk about oneself, exposing the lived, the fears, the physical and emotional pain.
This is Us. Who, with a smile and with tears, live the Desmoid Tumor every day. Or his heavy legacy.
#desmoidian #desmoidtumor
desmoidcanada (Instagram)
The DFC invites you all to join us, for our 3rd Annual Fundraising Event! 🎉🎤 On May 2, 2019! “Play It Forward For A Cure”, will have live musical entertainment. Featuring, Blues Soloist -Shakura S’Aida and a band from Hamilton/Burlington -Slow Monday! We will have great live auction getaways and awesome silent auction items.
We hope that you can make it! If not, please donate and help us raise the funds needed to further fund current and new research initiatives.
New this year we have early bird tickets!! Make sure to get yours by March 15th! Tickets are available here:
https://www.canadahelps.org/en/charities/desmoid-tumour-foundation-of-canada/events/play-it-forward/
All your support continues to make a difference, we are seeing tangible results already! We look forward to seeing you all on May 2nd!
#desmoidtumours #raredisease #fundraisingevent
#desmoidcommunity #awareness #desmoidcanada
The DFC invites you all to join us, for our 3rd Annual Fundraising Event! 🎉🎤 On May 2, 2019! “Play It Forward For A Cure”, will have live musical entertainment. Featuring, Blues Soloist -Shakura S’Aida and a band from Hamilton/Burlington -Slow Monday! We will have great live auction getaways and awesome silent auction items.
We hope that you can make it! If not, please donate and help us raise the funds needed to further fund current and new research initiatives.
New this year we have early bird tickets!! Make sure to get yours by March 15th! Tickets are available here:
https://www.canadahelps.org/en/charities/desmoid-tumour-foundation-of-canada/events/play-it-forward/
All your support continues to make a difference, we are seeing tangible results already! We look forward to seeing you all on May 2nd!
#desmoidtumours #raredisease #fundraisingevent
#desmoidcommunity #awareness #desmoidcanada
sosdesmoide (Instagram)
Pique-niques à Saint-Cloud et à Nancy dimanche prochain pour toutes les personnes concernées ou intéressées par la tumeur desmoïde. Si vous souhaitez vous aussi organiser un pique nique dans une autre ville, faites le nous savoir ?!
#sosdesmoïde #tumeurdesmoïde #association #maladierare #solidarité #recherchemedicale #entraide #rencontreamicale #romprelisolement #desmoidtumor #desmoid #saintcloud #nancy @villedesaintcloud @ville_de_nancy @domainenationaldesaintcloud
Pique-niques à Saint-Cloud et à Nancy dimanche prochain pour toutes les personnes concernées ou intéressées par la tumeur desmoïde. Si vous souhaitez vous aussi organiser un pique nique dans une autre ville, faites le nous savoir ?!
#sosdesmoïde #tumeurdesmoïde #association #maladierare #solidarité #recherchemedicale #entraide #rencontreamicale #romprelisolement #desmoidtumor #desmoid #saintcloud #nancy @villedesaintcloud @ville_de_nancy @domainenationaldesaintcloud
desmoidfoundation (Instagram)
* DESMOID FOUNDATION PHOTO CONTEST * 📸 ..Our goal? Arriving all over Italy with our posters, and we are succeeding thanks to you!
Today we are in the wonderful Piazza del Campo in Siena 🐎 to remind you that you can give us your 5X1000 by entering the Tax Code 97833170158 in the tax return ... Thanks ❤️ #desmoid #desmoidtumor #desmoidian
* DESMOID FOUNDATION PHOTO CONTEST * 📸 ..Our goal? Arriving all over Italy with our posters, and we are succeeding thanks to you!
Today we are in the wonderful Piazza del Campo in Siena 🐎 to remind you that you can give us your 5X1000 by entering the Tax Code 97833170158 in the tax return ... Thanks ❤️ #desmoid #desmoidtumor #desmoidian
desmoidcanada (Instagram)
Check out Conquer Cancer ASCO Foundation —Advancing Clinical Research!
https://www.conquer.org/advancing-clinical-research
Check out Conquer Cancer ASCO Foundation —Advancing Clinical Research!
https://www.conquer.org/advancing-clinical-research
sosdesmoide (Instagram)
Dimanche 9 juin, retrouvez Joëlle et d'autres amis desmoïdiens pour un pique nique au domaine national de Saint-Cloud ! L'occasion de se rencontrer, de partager et de discuter dans un cadre et une ambiance musicale sympas. Venez nombreux !!! #sosdesmoïde #tumeurdesmoïde #association #maladierare #solidarité #recherchemedicale #entraide #rencontreamicale #romprelisolement #desmoidtumor #desmoid #saintcloud #domainenationaldesaintcloud #concertetjeuxdeau @alliance_maladies_rares @eurordis @liguecontrelecancer @villedesaintcloud
@domainenationaldesaintcloud @desmoidfoundation @desmoidtumor_
Dimanche 9 juin, retrouvez Joëlle et d'autres amis desmoïdiens pour un pique nique au domaine national de Saint-Cloud ! L'occasion de se rencontrer, de partager et de discuter dans un cadre et une ambiance musicale sympas. Venez nombreux !!! #sosdesmoïde #tumeurdesmoïde #association #maladierare #solidarité #recherchemedicale #entraide #rencontreamicale #romprelisolement #desmoidtumor #desmoid #saintcloud #domainenationaldesaintcloud #concertetjeuxdeau @alliance_maladies_rares @eurordis @liguecontrelecancer @villedesaintcloud
@domainenationaldesaintcloud @desmoidfoundation @desmoidtumor_
desmoidcanada (Instagram)
We encourage all Canadian Desmoid patients and your families, to join our Canadian Desmoid Facebook Support Group!
The DFC support network is here for you, and we hope you know you are not alone! ♥️ The support group allows you to; talk with other Desmoid patients, share your personal experiences & stories and we are always keeping you informed on the latest treatments, trials & new research initiatives.
Make sure to join our Canadian support network and be part of our Canadian Desmoid family!
Check us out on Facebook: Desmoid Tumour Foundation Of Canada and join today! 🇨🇦
#DFC #DTRF #desmoidtumours #raredisease #notalone #canadian #supportgroup #desmoidcommunity
We encourage all Canadian Desmoid patients and your families, to join our Canadian Desmoid Facebook Support Group!
The DFC support network is here for you, and we hope you know you are not alone! ♥️ The support group allows you to; talk with other Desmoid patients, share your personal experiences & stories and we are always keeping you informed on the latest treatments, trials & new research initiatives.
Make sure to join our Canadian support network and be part of our Canadian Desmoid family!
Check us out on Facebook: Desmoid Tumour Foundation Of Canada and join today! 🇨🇦
#DFC #DTRF #desmoidtumours #raredisease #notalone #canadian #supportgroup #desmoidcommunity
sosdesmoide (Instagram)
Ce week-end, Joëlle et Lucas font une vente de leurs articles @msaintcloud et reverseront une partie de leurs bénéfices à SOS Desmoïde. Et si vous aussi, vous releviez le défi SOS Desmoïde ?@msaintcloud@defi#tumeur #alliancemaladiesrares @alliance_maladies_rares @sosdesmoide
Ce week-end, Joëlle et Lucas font une vente de leurs articles @msaintcloud et reverseront une partie de leurs bénéfices à SOS Desmoïde. Et si vous aussi, vous releviez le défi SOS Desmoïde ?@msaintcloud@defi#tumeur #alliancemaladiesrares @alliance_maladies_rares @sosdesmoide