Associação Brasileira do Tumor Desmóide
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Canal criado para o compartilhamento de informações acerca do tumor desmóide <3 #desmoide #desmoid
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desmoidfoundation (Instagram)

We’re so glad to attend the Wecan Academy 2019 in Cancer Patient Advocacy!

#desmoidtumor #desmoidian #desmoidian #tumoredesmoide #wecanaccademy
desmoidfoundation (Instagram)

Inaugurated the first EVENT FOR FUNDRAISING of the Desmoid foundation ONLUS We sincerely thank the @pubblicaassistenzatorrita di Siena with all its volunteers for making this wonderful event possible! ☺️
❤️ #desmoidtumor #desmoidian
desmoidcanada (Instagram)

Thank you to everyone who donated or attended our 3rd annual DFC fundraising event “Play It Forward For A Cure”, it was a huge success!
A big shoutout to @shakurasaida and Slow Monday who performed live last night @revivalbartoronto

Thank you @nancycroitoru for running the Desmoid Tumour Foundation of Canada and for organizing last nights event “Play It Forward For A Cure”. The executive committee and volunteers, thank you for your dedication, efforts and hard work that you put forth for the DFC’s event yesterday!
With all your generous contributions and donations, we are one step closer to finding a cure for all Desmoid Tumours. 🎉🦄♥️ #raredisease #desmoid
#desmoidtumour #desmoidcanada #desmoidcommunity #awareness #charity #fundraisingevent
sosdesmoide (Instagram)

En raison de cette canicule nos hôpitaux étouffent et les malades suffoquent dans leurs chambres, nous pensons fort à eux. @alliance_maladies_rares @sosdesmoide #canicule2019 #maladiesraresinfoservices #chambrehôpital
desmoidfoundation (Instagram)

Just a year ago, three patients began collaborating with the doctors of the @istituto_tumori to build what would become the Desmoid Foundation Italy, the first Italian non-profit organization that deals exclusively with desmoid tumor.

Now, let’s believe together 💪

#desmoidtumor #desmoidian
desmoidcanada (Instagram)

Get your TICKETS today, to our 3rd annual DFC fundraising event PLAY IT FORWARD FOR A CURE🎉
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New this year we have amazing live entertainment featuring @shakurasaida award-winning Blues artist and Slow Monday a band from Burlington/Hamilton covering the classics from the ‘70s and ‘80s!🎤 *
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Check out our website at https://desmoidcanada.com for more details on our event and to get your tickets today!
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The DFC is excited to see you all on Thursday, May 2nd at @revivalbartoronto and together we are one step closer to finding a cure for all Desmoid Tumours. ♥️🇨🇦
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#desmoidtumours #desmoidcanada
#raredisease #desmoidawareness #fundraising #annualevent #raiseawareness
sosdesmoide (Instagram)

La réunion Task Force qui a eu lieu ce samedi matin à Paris.
Elle a permis la rencontre des membres du groupe de réflexion autour de la recherche sur les tumeurs desmoïdes (médecins et bénévoles de l'association)
Nous avons discuté des différents projets de recherche en cours et des pistes à investiguer.
@alliance_maladies_rares @sosdesmoide #tumeur #alliancemaladiesrares #taskforce #recherchemedicale
desmoidfoundation (Instagram)

These women are two desmoid patients who have been struggling for research for years!
From now, they will have the Desmoid Foundation to support them in this project! 💪

Together we are stronger!
desmoidcanada (Instagram)

Only 15 days left until our 3rd annual fundraising event, PLAY IT FORWARD FOR A CURE 🎼🇨🇦 Are you ready to hear some amazing musical talent?
Performing live at this years event is, Canadian award winning blues artist @shakurasaida 🎤🥂 Come out and support the DFC on May 2nd! You will be sure to have an awesome evening.
Get your tickets today at:
https://www.canadahelps.org/en/charities/desmoid-tumour-foundation-of-canada/events/play-it-forward/

We look forward to seeing you all in the next couple of weeks!
#desmoidtumours #desmoidcanada #raredisease #desmoidcommunity #raiseawareness
desmoidfoundation (Instagram)

She is Teresa.
She’s a patient of the Desmoid foundation Young: a section of the association dedicated entirely to children.

But first of all she is a lioness and a fighter.

The Desmoid Foundation is a big family and we are all here to cheer on her and wish her to get back into shape soon! Be strong Teresa❤️ #desmoidtumor #desmoidian
desmoidfoundation (Instagram)

They are some of our super guys at work, designing the * Desmoid Foundation Young * section: made up of younger patients with desmoid tumor.

This will be a dedicated space where they can express all their emotions, fears and ideas!😎 This is why we care about this YOUNG section.
Because we believe that at 20, every girl and boy should think only about her/his own future and how to break the world.
They should not face a tumor.

But if they have to do it, better be in good company! 💪❤️ #desmoidtumor #desmoidian
desmoidcanada (Instagram)

Are you ready for this years live and silent auction?
We have awesome new live auction getaways and great silent auction items, that could be yours!! Check out this years auction items here:
https://desmoidcanada.com/auction-items/2019-auction-items/

Get your tickets today! WE need your support! Looking forward to seeing you on May 2nd!
https://www.canadahelps.org/en/charities/desmoid-tumour-foundation-of-canada/events/play-it-forward/
desmoidfoundation (Instagram)

Here we are:
new logo
new design
always the same determination 💪

Thanks to #kirweb 😘
sosdesmoide (Instagram)

SOS Desmoïde face à la chaîne des Annapurna. Encouragez Françoise dans ces aventures...
desmoidcanada (Instagram)

Are you ready to rock to some great cover classics from the 70’s and 80’s with Slow Monday and be amazed by Canada’s finest Blues Soloist Shakura S’Aida?
Make sure to get your tickets to our 3rd annual DFC fundraising event PLAY IT FORWARD FOR A CURE, held on May 2nd at Revival Bar, Toronto.
Your participation is needed to raise funds for Desmoid Tumour Research for a cure! ♥️🎉 Get your tickets or donate here:
https://www.canadahelps.org/en/charities/desmoid-tumour-foundation-of-canada/events/play-it-forward/
desmoidfoundation (Instagram)

Trovare una cura. Creare centri di riferimento in tutta Italia. Supportare i pazienti durante il loro percorso diagnostico e terapeutico.
Questo è il nostro obiettivo.
AIUTACI DONANDO IL tuo 5X1000 alla Desmoid Foundation ONLUS 🤝
È molto semplice: non costa nulla.
Basta apporre una FIRMA sulla tua DICHIARAZIONE DEI REDDITI, nell’apposito riquadro:
”Sostegno del volontariato e delle altre Fondazioni non lucrative di utilità sociale, delle Associazioni di promozione sociale e delle Associazioni e fondazioni riconosciute che operano nei settori di cui all’art. 10, C. 1, lett. A del D.Lgs. n. 460ndel 1997”
Indicando il nostro CODICE FISCALE:
97833170158

Grazie ❤️
sosdesmoide (Instagram)

En raison de la pluie annoncée, le pique nique prévu au parc de Saint-Cloud aujourd'hui est annulé... Mais ce n'est que partie remise !
#sosdesmoïde #tumeurdesmoïde #association #maladierare #solidarité #entraide #maladiesrares #recherchemedicale #desmoidtumor #desmoid #saintcloud #domainenationaldesaintcloud #piquenique
desmoidcanada (Instagram)

It’s time to get your TICKETS for our 3rd annual fundraising event, Play It Forward for A Cure!

New this year we have LIVE ENTERTAINMENT! Featuring Shakura S'aida a Canadian Blues Soloist and Slow Monday a Rock Band covering the classics from the 70's & 80's.

Get ready for some awesome live auction getaways, fun silent auction items, great food and drinks all night long. You will be sure to have a great time!

We need your support! Please get your tickets TODAY... and support all Canadians suffering with Desmoid Tumours.

Looking forward to seeing you all on Thursday May 2, 2019 and together we are one step closer to finding a cure ♥️🎉 Tickets Available Here:
https://www.canadahelps.org/en/charities/desmoid-tumour-foundation-of-canada/events/play-it-forward/
desmoidfoundation (Instagram)

If you need support...contact us! ☎️ #desmoidtumor #desmoidian