desmoidcanada (Instagram)
The DFC invites you all to join us, for our 3rd Annual Fundraising Event! 🎉🎤 On May 2, 2019! “Play It Forward For A Cure”, will have live musical entertainment. Featuring, Blues Soloist -Shakura S’Aida and a band from Hamilton/Burlington -Slow Monday! We will have great live auction getaways and awesome silent auction items.
We hope that you can make it! If not, please donate and help us raise the funds needed to further fund current and new research initiatives.
New this year we have early bird tickets!! Make sure to get yours by March 15th! Tickets are available here:
https://www.canadahelps.org/en/charities/desmoid-tumour-foundation-of-canada/events/play-it-forward/
All your support continues to make a difference, we are seeing tangible results already! We look forward to seeing you all on May 2nd!
#desmoidtumours #raredisease #fundraisingevent
#desmoidcommunity #awareness #desmoidcanada
The DFC invites you all to join us, for our 3rd Annual Fundraising Event! 🎉🎤 On May 2, 2019! “Play It Forward For A Cure”, will have live musical entertainment. Featuring, Blues Soloist -Shakura S’Aida and a band from Hamilton/Burlington -Slow Monday! We will have great live auction getaways and awesome silent auction items.
We hope that you can make it! If not, please donate and help us raise the funds needed to further fund current and new research initiatives.
New this year we have early bird tickets!! Make sure to get yours by March 15th! Tickets are available here:
https://www.canadahelps.org/en/charities/desmoid-tumour-foundation-of-canada/events/play-it-forward/
All your support continues to make a difference, we are seeing tangible results already! We look forward to seeing you all on May 2nd!
#desmoidtumours #raredisease #fundraisingevent
#desmoidcommunity #awareness #desmoidcanada
desmoidfoundation (Instagram)
This is us. We are few: every year 2 people out of a million discover they have a #desmoidtumor and join us.
This is us, we have a Rare Tumor: men and women who have in common the deep and courageous gaze of those who want to get up and react. "Strangers" who a month ago had the opportunity to meet each other and discover a FAMILY. The courage to talk about oneself, exposing the lived, the fears, the physical and emotional pain.
This is Us. Who, with a smile and with tears, live the Desmoid Tumor every day. Or his heavy legacy.
#desmoidian #desmoidtumor
This is us. We are few: every year 2 people out of a million discover they have a #desmoidtumor and join us.
This is us, we have a Rare Tumor: men and women who have in common the deep and courageous gaze of those who want to get up and react. "Strangers" who a month ago had the opportunity to meet each other and discover a FAMILY. The courage to talk about oneself, exposing the lived, the fears, the physical and emotional pain.
This is Us. Who, with a smile and with tears, live the Desmoid Tumor every day. Or his heavy legacy.
#desmoidian #desmoidtumor
desmoidcanada (Instagram)
Check out Conquer Cancer ASCO Foundation —Advancing Clinical Research!
https://www.conquer.org/advancing-clinical-research
Check out Conquer Cancer ASCO Foundation —Advancing Clinical Research!
https://www.conquer.org/advancing-clinical-research
desmoidfoundation (Instagram)
* DESMOID FOUNDATION PHOTO CONTEST * 📸 ..Our goal? Arriving all over Italy with our posters, and we are succeeding thanks to you!
Today we are in the wonderful Piazza del Campo in Siena 🐎 to remind you that you can give us your 5X1000 by entering the Tax Code 97833170158 in the tax return ... Thanks ❤️ #desmoid #desmoidtumor #desmoidian
* DESMOID FOUNDATION PHOTO CONTEST * 📸 ..Our goal? Arriving all over Italy with our posters, and we are succeeding thanks to you!
Today we are in the wonderful Piazza del Campo in Siena 🐎 to remind you that you can give us your 5X1000 by entering the Tax Code 97833170158 in the tax return ... Thanks ❤️ #desmoid #desmoidtumor #desmoidian
desmoidcanada (Instagram)
We encourage all Canadian Desmoid patients and your families, to join our Canadian Desmoid Facebook Support Group!
The DFC support network is here for you, and we hope you know you are not alone! ♥️ The support group allows you to; talk with other Desmoid patients, share your personal experiences & stories and we are always keeping you informed on the latest treatments, trials & new research initiatives.
Make sure to join our Canadian support network and be part of our Canadian Desmoid family!
Check us out on Facebook: Desmoid Tumour Foundation Of Canada and join today! 🇨🇦
#DFC #DTRF #desmoidtumours #raredisease #notalone #canadian #supportgroup #desmoidcommunity
We encourage all Canadian Desmoid patients and your families, to join our Canadian Desmoid Facebook Support Group!
The DFC support network is here for you, and we hope you know you are not alone! ♥️ The support group allows you to; talk with other Desmoid patients, share your personal experiences & stories and we are always keeping you informed on the latest treatments, trials & new research initiatives.
Make sure to join our Canadian support network and be part of our Canadian Desmoid family!
Check us out on Facebook: Desmoid Tumour Foundation Of Canada and join today! 🇨🇦
#DFC #DTRF #desmoidtumours #raredisease #notalone #canadian #supportgroup #desmoidcommunity
sosdesmoide (Instagram)
Tumeur Desmoïde et grossesse #tumeur #grossesse @alliance_maladies_rares @desmoidfoundation #maladiesraresinfoservices
Tumeur Desmoïde et grossesse #tumeur #grossesse @alliance_maladies_rares @desmoidfoundation #maladiesraresinfoservices
desmoidcanada (Instagram)
The DFC team is excited to announce that, our 3rd Annual Fundraising Event will be held on Thursday May 2nd!
Make sure to SAVE THE DATE! We will provide you with more details in the upcoming weeks!
Get ready for some amazing live entertainment and yummy food 🎉Looking forward to seeing you all at the event!
#fundraising #event #savethedate #desmoidtumours #raisingawareness #community
The DFC team is excited to announce that, our 3rd Annual Fundraising Event will be held on Thursday May 2nd!
Make sure to SAVE THE DATE! We will provide you with more details in the upcoming weeks!
Get ready for some amazing live entertainment and yummy food 🎉Looking forward to seeing you all at the event!
#fundraising #event #savethedate #desmoidtumours #raisingawareness #community
sosdesmoide (Instagram)
A lire, il est important de bien communiquer avec les soignants @sosdesmoide @alliance_maladies_rares #tumeur #maladiesraresinfoservices #desmoidtumor
A lire, il est important de bien communiquer avec les soignants @sosdesmoide @alliance_maladies_rares #tumeur #maladiesraresinfoservices #desmoidtumor
sosdesmoide (Instagram)
En raison de cette canicule nos hôpitaux étouffent et les malades suffoquent dans leurs chambres, nous pensons fort à eux. @alliance_maladies_rares @sosdesmoide #canicule2019 #maladiesraresinfoservices #chambrehôpital
En raison de cette canicule nos hôpitaux étouffent et les malades suffoquent dans leurs chambres, nous pensons fort à eux. @alliance_maladies_rares @sosdesmoide #canicule2019 #maladiesraresinfoservices #chambrehôpital
sosdesmoide (Instagram)
La réunion Task Force qui a eu lieu ce samedi matin à Paris.
Elle a permis la rencontre des membres du groupe de réflexion autour de la recherche sur les tumeurs desmoïdes (médecins et bénévoles de l'association)
Nous avons discuté des différents projets de recherche en cours et des pistes à investiguer.
@alliance_maladies_rares @sosdesmoide #tumeur #alliancemaladiesrares #taskforce #recherchemedicale
La réunion Task Force qui a eu lieu ce samedi matin à Paris.
Elle a permis la rencontre des membres du groupe de réflexion autour de la recherche sur les tumeurs desmoïdes (médecins et bénévoles de l'association)
Nous avons discuté des différents projets de recherche en cours et des pistes à investiguer.
@alliance_maladies_rares @sosdesmoide #tumeur #alliancemaladiesrares #taskforce #recherchemedicale
sosdesmoide (Instagram)
Aidez-nous à vous aider... adhérez👍🏻#tumeur #alliancemaladiesrares @alliance_maladies_rares @sosdesmoide #don #adhésion #aide #recherchemaladie
Aidez-nous à vous aider... adhérez👍🏻#tumeur #alliancemaladiesrares @alliance_maladies_rares @sosdesmoide #don #adhésion #aide #recherchemaladie
sosdesmoide (Instagram)
#tumeur #alliancemaladiesrares @alliance_maladies_rares @sosdesmoide #forum#sarcome
#tumeur #alliancemaladiesrares @alliance_maladies_rares @sosdesmoide #forum#sarcome
sosdesmoide (Instagram)
En raison de la pluie annoncée, le pique nique prévu au parc de Saint-Cloud aujourd'hui est annulé... Mais ce n'est que partie remise !☔☔☔☔☔
#sosdesmoïde #tumeurdesmoïde #association #maladierare #solidarité #entraide #maladiesrares #recherchemedicale #desmoidtumor #desmoid #saintcloud #domainenationaldesaintcloud #piquenique
En raison de la pluie annoncée, le pique nique prévu au parc de Saint-Cloud aujourd'hui est annulé... Mais ce n'est que partie remise !☔☔☔☔☔
#sosdesmoïde #tumeurdesmoïde #association #maladierare #solidarité #entraide #maladiesrares #recherchemedicale #desmoidtumor #desmoid #saintcloud #domainenationaldesaintcloud #piquenique
sosdesmoide (Instagram)
Pensez à adhérer : https://www.sos-desmoide.asso.fr/billetterie/offre/93231-m-adherez-a-sos-desmoide?header=%2Fpage%2F440289-adherer @alliance_maladies_rares @sosdesmoide #tumeur #alliancemaladiesrares #adherer #don
Pensez à adhérer : https://www.sos-desmoide.asso.fr/billetterie/offre/93231-m-adherez-a-sos-desmoide?header=%2Fpage%2F440289-adherer @alliance_maladies_rares @sosdesmoide #tumeur #alliancemaladiesrares #adherer #don
Bom dia, pessoal, tudo bem com vocês?
⚠️ PRIMEIRA "LIVE DESMOIDEANA" ⚠️
HOJE (16/08) às 20:00 pelo Zoom
aberta a todos que puderem e quiserem!!
Vamos nos encontrar e pensar em formas de movimentarmos as redes sociais para o mês do tumor desmóide ❤️
Quando tiver perto do horário, @Georgia Garofalo enviará o link no grupo do whatsapp e repasso aqui!
⚠️ PRIMEIRA "LIVE DESMOIDEANA" ⚠️
HOJE (16/08) às 20:00 pelo Zoom
aberta a todos que puderem e quiserem!!
Vamos nos encontrar e pensar em formas de movimentarmos as redes sociais para o mês do tumor desmóide ❤️
Quando tiver perto do horário, @Georgia Garofalo enviará o link no grupo do whatsapp e repasso aqui!
Entrar na reunião Zoom
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ID da reunião: 874 3748 1696
Senha de acesso: 436970
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+12532158782,,87437481696#,,#,436970# Estados Unidos da América (Tacoma)
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Discar pelo seu local
+1 253 215 8782 Estados Unidos da América (Tacoma)
+1 301 715 8592 Estados Unidos da América (Germantown)
+1 312 626 6799 Estados Unidos da América (Chicago)
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