' the deep pain of doctors actively obstructing treatment for the treatable secondary conditions you acquired through medical neglect.

the deep pain of knowing for years what might be underlying it all and having no way to access diagnosis and treatment, while it all worsens. '

https://twitter.com/benthicjew/status/1314221259899666432?s=19

Do disabled people exist in the future or do we just kill them outright to avoid the hassle?

Maybe we don't disable people in the future.

I would sure like to see more signs of that.

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"...plunges you into an endless series of life-threatening emergencies it is no one's job to help you with..."

“Another aspect that makes medical trauma particularly pernicious is the way we may be forced to face our abuser and pretend nothing has happened. Even if we manage to cut them off, their pointed comments may stick in our medical files.”
https://medicalerrorinterviews.podbean.com/e/maija-haavisto-medical-writer-talks-about-continuous-medical-trauma-and-long-covid-and-mecfs

"LIVING IN FEAR?
KILL THE POOR"

Porphyria's Lover
BY ROBERT BROWNING
The rain set early in to-night,
       The sullen wind was soon awake,
It tore the elm-tops down for spite,
       And did its worst to vex the lake:
       I listened with heart fit to break.
When glided in Porphyria; straight
       She shut the cold out and the storm,
And kneeled and made the cheerless grate
       Blaze up, and all the cottage warm;
       Which done, she rose, and from her form
Withdrew the dripping cloak and shawl,
       And laid her soiled gloves by, untied
Her hat and let the damp hair fall,
       And, last, she sat down by my side
       And called me. When no voice replied,
She put my arm about her waist,
       And made her smooth white shoulder bare,
And all her yellow hair displaced,
       And, stooping, made my cheek lie there,
       And spread, o'er all, her yellow hair,
Murmuring how she loved me — she
       Too weak, for all her heart's endeavour,
To set its struggling passion free
       From pride, and vainer ties dissever,
       And give herself to me for ever.
But passion sometimes would prevail,
       Nor could to-night's gay feast restrain
A sudden thought of one so pale
       For love of her, and all in vain:
       So, she was come through wind and rain.
Be sure I looked up at her eyes
       Happy and proud; at last I knew
Porphyria worshipped me; surprise
       Made my heart swell, and still it grew
       While I debated what to do.
That moment she was mine, mine, fair,
       Perfectly pure and good: I found
A thing to do, and all her hair
       In one long yellow string I wound
       Three times her little throat around,
And strangled her. No pain felt she;
       I am quite sure she felt no pain.
As a shut bud that holds a bee,
       I warily oped her lids: again
       Laughed the blue eyes without a stain.
And I untightened next the tress
       About her neck; her cheek once more
Blushed bright beneath my burning kiss:
       I propped her head up as before,
       Only, this time my shoulder bore
Her head, which droops upon it still:
       The smiling rosy little head,
So glad it has its utmost will,
       That all it scorned at once is fled,
       And I, its love, am gained instead!
Porphyria's love: she guessed not how
       Her darling one wish would be heard.
And thus we sit together now,
       And all night long we have not stirred,
       And yet God has not said a word!
https://www.poetryfoundation.org/poems/46313/porphyrias-lover