Forwarded from 🔊 Aimé • Public Blog Space (Max Morris)
Forwarded from 🔊 Aimé • Public Blog Space (Aimé Lilithe)
"Hi everyone,
Another update has been posted to my corwdfunding site. Please read and share and donate if you can. I can still make it through and I have someone who is very caring who has reached out and willing to help. But I need your help in order to get the help that I need. Did I say that right? 🤔
Going without even bare necessities such as safe housing and enough food and supplements to help my depleted body. This is critical for me to survive and no one should be going through what I am. No one. Especially when dealing with infections in the brain, swelling and not being able to figure out what to do or where to go because of this. Completely alone. And because this is all internal, those who see me cannot tell I'm sick at all so they don't see the help I need. I struggle to remember sometimes how to cook or what clothing is appropriate for the day.
I would very much like to live and have a place to live and heal so that I can work again and stand on my own two feet like I did before all of this. I also want and need to be able to get to a point where I can pay for my own treatments and care. But more recovery needs to happen before I can even think about working again.
As of now, I'm going without any treatment and this is very dangerous ( No, not being overdramatic. These illnesses I am dealing with do and will take lives everyday. One being one of my good friends recently). They just aren't as well known as other illnesses and so people don't think it's a big deal. This is so much more complicated than just some aching joints or allergies to things.
Many people have turned away from me because they don't understand my illnesses and don't take them seriously like they do others. Or they are just sick of my situation and being sick. Trust me, I AM TOO. It breaks my heart more than I can begin to express as this is very real and I am just as in need of love, support and understanding. It's been devastating watching so many of my relationships desolve over the years because of my health. My whole community. Especially now when I finally have the answers I looked for for so long!
This is all very hard for me to put out here. I'm still so embarrassed. But I promise, I'm still the same Lisa you knew inside and this is the LAST thing I want to be talking about or posting about on social media. There's too many funny vifeos and memes out there that I need to be posting instead! 😆 I'm hoping and praying that I don't have to anymore very soon. I'm sure many out there wish the same as this isn't a "fun" or "funny" post to see on your feed. I get it.
I know I was missing from peoples lives for a very long time because I was too sick to do anything and had no idea at that point what was even happening to me. All I knew was my entire body was breaking down and the medical community watched it happen with indifference year after year. All my friends saw was me canceling plans and falling off the face of the Earth.
I often had to cancel plans at the last minute and I hated it. I'm naturally a social person. Which is why this isolation that has come with this has been one of the hardest things about this to deal with.
I'm sorry and I promise you, I always wanted to be there. I still do. I still love to laugh and dance and play and just be silly. All things I'm wanting to be able to to do again. I don't want to miss anything else.
The doctors and treatments I desperately need are not covered by insurance. At all. For very political reasons and it's disgraceful and shameful. Remeber AIDS in the early 80s? No treatment and no one understood it and people just left to get sicker and sicker until they were gone? All because of denial and prejudice. Well, it's a lot like that. Unless you are lucky enough to catch this stuff in the very beginning or are wealthy enough to fly to other countries for expensive treatments. I wasn't that lucky.
The cost of recovering from these illnesses, especially when it means finding a new home, is staggering. And it makes people like me who had already lost everything due to
Another update has been posted to my corwdfunding site. Please read and share and donate if you can. I can still make it through and I have someone who is very caring who has reached out and willing to help. But I need your help in order to get the help that I need. Did I say that right? 🤔
Going without even bare necessities such as safe housing and enough food and supplements to help my depleted body. This is critical for me to survive and no one should be going through what I am. No one. Especially when dealing with infections in the brain, swelling and not being able to figure out what to do or where to go because of this. Completely alone. And because this is all internal, those who see me cannot tell I'm sick at all so they don't see the help I need. I struggle to remember sometimes how to cook or what clothing is appropriate for the day.
I would very much like to live and have a place to live and heal so that I can work again and stand on my own two feet like I did before all of this. I also want and need to be able to get to a point where I can pay for my own treatments and care. But more recovery needs to happen before I can even think about working again.
As of now, I'm going without any treatment and this is very dangerous ( No, not being overdramatic. These illnesses I am dealing with do and will take lives everyday. One being one of my good friends recently). They just aren't as well known as other illnesses and so people don't think it's a big deal. This is so much more complicated than just some aching joints or allergies to things.
Many people have turned away from me because they don't understand my illnesses and don't take them seriously like they do others. Or they are just sick of my situation and being sick. Trust me, I AM TOO. It breaks my heart more than I can begin to express as this is very real and I am just as in need of love, support and understanding. It's been devastating watching so many of my relationships desolve over the years because of my health. My whole community. Especially now when I finally have the answers I looked for for so long!
This is all very hard for me to put out here. I'm still so embarrassed. But I promise, I'm still the same Lisa you knew inside and this is the LAST thing I want to be talking about or posting about on social media. There's too many funny vifeos and memes out there that I need to be posting instead! 😆 I'm hoping and praying that I don't have to anymore very soon. I'm sure many out there wish the same as this isn't a "fun" or "funny" post to see on your feed. I get it.
I know I was missing from peoples lives for a very long time because I was too sick to do anything and had no idea at that point what was even happening to me. All I knew was my entire body was breaking down and the medical community watched it happen with indifference year after year. All my friends saw was me canceling plans and falling off the face of the Earth.
I often had to cancel plans at the last minute and I hated it. I'm naturally a social person. Which is why this isolation that has come with this has been one of the hardest things about this to deal with.
I'm sorry and I promise you, I always wanted to be there. I still do. I still love to laugh and dance and play and just be silly. All things I'm wanting to be able to to do again. I don't want to miss anything else.
The doctors and treatments I desperately need are not covered by insurance. At all. For very political reasons and it's disgraceful and shameful. Remeber AIDS in the early 80s? No treatment and no one understood it and people just left to get sicker and sicker until they were gone? All because of denial and prejudice. Well, it's a lot like that. Unless you are lucky enough to catch this stuff in the very beginning or are wealthy enough to fly to other countries for expensive treatments. I wasn't that lucky.
The cost of recovering from these illnesses, especially when it means finding a new home, is staggering. And it makes people like me who had already lost everything due to
Forwarded from 🔊 Aimé • Public Blog Space (Aimé Lilithe)
misdiagnosis including years of my life, their homes, savings, support system, possessions and productivity give up. It feels hopeless but it doesn't have to be with your help.
I can't even begin to express how much I appreciate those who have stuck around. Even if I could find a place here that hasn't been water damaged, I can't afford rent on my own with a very small disability check and no food stamps (I only get $15 a month which buys nothing and on a very restricted diet).
Cleanliness has absolutely nothing to do with toxic mold. I always feel like people must think I wasn't clean and thats why this happened. No, not at all. I always kept my homes spotless. I'm half portuguese. Lol I cleaned every week top to bottom since I was a kid apartments, houses, whatever. My Mother made sure I learned that at a young age.
And when I became disabled and I couldn't clean anymore, I would have someone come and help clean for me. I got sick from black mold in an air conditioning unit and a hidden roof leak. This was after a surgery I had (While Lyme unknowingly broke my immune system. Then the exposures and untreated infections made me susceptible. A perfect storm of events)
Sorry this is so long but I always feel like I need to explain why I have to put myself through the humiliation of asking for help over and over. I hate it. But I want to live. Badly. I want my life back and dedicated to doing whatever it takes to get there without making myself worse. It took me so much to figure all of this out on my own. Now, I want some recovery. Whatever it's going to look like. But it can't look and feel like this anymore. There has to be something better waiting for me.
My family needs me, especially my Dad ❤ and my amazing, adorable and aging son. 😣 ( My 13 year old Toy Poodle, Milo whom I miss more than words can ever express 🐩❤).
There are housing options that would allow for me to have a place to heal and for treatments to work. But I cannot access any of these options without enough funds to do so. Living in my car last winter or trying to almost ended up fatally.
Thank you to anyone and everyone who actually read this.
PLEASE check out my GFM for the update to see why I'm asking for your help again and what could be with your help.
Please consider contributing if you can. Any amount at all helps.
And please share it or like this post to bump it up. You never know who could see it that may be able to help in some big way.
Thanks so much everyone. I love you all. ❤"
I can't even begin to express how much I appreciate those who have stuck around. Even if I could find a place here that hasn't been water damaged, I can't afford rent on my own with a very small disability check and no food stamps (I only get $15 a month which buys nothing and on a very restricted diet).
Cleanliness has absolutely nothing to do with toxic mold. I always feel like people must think I wasn't clean and thats why this happened. No, not at all. I always kept my homes spotless. I'm half portuguese. Lol I cleaned every week top to bottom since I was a kid apartments, houses, whatever. My Mother made sure I learned that at a young age.
And when I became disabled and I couldn't clean anymore, I would have someone come and help clean for me. I got sick from black mold in an air conditioning unit and a hidden roof leak. This was after a surgery I had (While Lyme unknowingly broke my immune system. Then the exposures and untreated infections made me susceptible. A perfect storm of events)
Sorry this is so long but I always feel like I need to explain why I have to put myself through the humiliation of asking for help over and over. I hate it. But I want to live. Badly. I want my life back and dedicated to doing whatever it takes to get there without making myself worse. It took me so much to figure all of this out on my own. Now, I want some recovery. Whatever it's going to look like. But it can't look and feel like this anymore. There has to be something better waiting for me.
My family needs me, especially my Dad ❤ and my amazing, adorable and aging son. 😣 ( My 13 year old Toy Poodle, Milo whom I miss more than words can ever express 🐩❤).
There are housing options that would allow for me to have a place to heal and for treatments to work. But I cannot access any of these options without enough funds to do so. Living in my car last winter or trying to almost ended up fatally.
Thank you to anyone and everyone who actually read this.
PLEASE check out my GFM for the update to see why I'm asking for your help again and what could be with your help.
Please consider contributing if you can. Any amount at all helps.
And please share it or like this post to bump it up. You never know who could see it that may be able to help in some big way.
Thanks so much everyone. I love you all. ❤"
Forwarded from 🔊 Aimé • Public Blog Space (Aimé Lilithe)
gofundme.com
A Home & Medical Care For Lisa
My sister Lisa used to be vibrant, bold, outgoing, hard -working , social, funny, happy. This is a photo of her before she fell ill: For the past 7 years she has been listless, timid, withdrawn, s...
Forwarded from 🔊 Aimé • Public Blog Space (Aimé Lilithe)
Posted by Lisa B
23 days ago
Share
It has been extremely difficult over the last few months for Lisa as she has had many new challenges with her basic care and treatment. Still unable to secure a stable home or the funds for basic living (nevermind thousands of dollars worth of treatments), and enduring continued debilitating pain and many many other symptoms, Lisa has continued to struggle. She had to leave the clinic where was receiving treatment in Feb/March as funds were exhausted and she was just starting to notice some improvements. She needs a solid plan and a place to live not temporarily but until she is completely well and functioning on her own.
However, we have a new development! We are excited to announce that Lisa has been receiving help from Carla Atherton, Director of The Healthy Family Formula, in order to put together a solid plan for recovery that is sustainable and effective. Carla has been helping Lisa find supports and tools to help her get well as well as help her to budget the funds she has available.
Although we are still looking for a place for Lisa to recover locally, there are other options we are also considering. Lisa has done an amazing job managing her challenges on her own, but it is time that she be able to shift from survival to recovery with a good, consistent foundation of support beneath her. Lisa is trying to tough it out where she is currently staying so she can attend several appointments with the specialists that are currently scheduled in her area. But accommodations remain a challenge that we are addressing every day. Lisa will need a place to stay while she heals and then will also need a long-term solution, a home, after she is back on her feet. Carla has also offered Lisa a clean, safe place to stay in Canada until she is recovered if this is the best choice for Lisa at this time. However, if it is logistically better for Lisa to remain in her home area for the duration of her recovery, we need to find a suitable place for her to stay. We are also considering several different healing centres and in-patient clinics that specialize in the kind of care that Lisa needs. In any case, she will need funding to pay for these accommodations and care. Lisa is currently temporarily staying with friends but needs to move out soon as they are currently selling their house. Solving this problem is top priority, and funding from supporters will open up many opportunities for Lisa.
As she is still unable to work, Lisa will also need funds to purchase food, necessities, and to receive the remaining treatments that she needs which include (but are not limited to):
-extensive work with a biological dentist to address toxic dental infection and mercury exposure. We have received 2 different quotes for the work that would be involved, both topping $10,000. It is evident that Lisa’s immune system will continue to work in overdrive until these infections are taken care of, so this is a top priority. One of the dentists who can do the work is quite a distance away, therefore, she will need to travel to the clinic and stay for 3 nights with a companion in a toxin-free hotel.
-surgery to rectify a tongue-tie that could potentially be one of the root causes of her constant and debilitating head and neck pain. She has had an assessment by a tongue-tie expert, and the surgery will cost $2,000.
-possibly Regenexx therapy to address and relieve the nerve compression and stenosis that is also causing her debilitating and constant pain.
-supplements that will address remaining toxicity, inflammation, and metabolic dysfunction. Although Lisa and Carla have tried to simplify the volume of supplements she will use in her recovery, they remain quite costly.
-ongoing support such as craniosacral therapy, trauma release, cold laser therapy, massage, and chiropractic care to address her dysregulated limbic system and complete her healing.
Lisa may also need to hire a care aid if funding allows.
It is apparent that we have a way to go yet until Lisa is fully recovered, so we are asking for help
23 days ago
Share
It has been extremely difficult over the last few months for Lisa as she has had many new challenges with her basic care and treatment. Still unable to secure a stable home or the funds for basic living (nevermind thousands of dollars worth of treatments), and enduring continued debilitating pain and many many other symptoms, Lisa has continued to struggle. She had to leave the clinic where was receiving treatment in Feb/March as funds were exhausted and she was just starting to notice some improvements. She needs a solid plan and a place to live not temporarily but until she is completely well and functioning on her own.
However, we have a new development! We are excited to announce that Lisa has been receiving help from Carla Atherton, Director of The Healthy Family Formula, in order to put together a solid plan for recovery that is sustainable and effective. Carla has been helping Lisa find supports and tools to help her get well as well as help her to budget the funds she has available.
Although we are still looking for a place for Lisa to recover locally, there are other options we are also considering. Lisa has done an amazing job managing her challenges on her own, but it is time that she be able to shift from survival to recovery with a good, consistent foundation of support beneath her. Lisa is trying to tough it out where she is currently staying so she can attend several appointments with the specialists that are currently scheduled in her area. But accommodations remain a challenge that we are addressing every day. Lisa will need a place to stay while she heals and then will also need a long-term solution, a home, after she is back on her feet. Carla has also offered Lisa a clean, safe place to stay in Canada until she is recovered if this is the best choice for Lisa at this time. However, if it is logistically better for Lisa to remain in her home area for the duration of her recovery, we need to find a suitable place for her to stay. We are also considering several different healing centres and in-patient clinics that specialize in the kind of care that Lisa needs. In any case, she will need funding to pay for these accommodations and care. Lisa is currently temporarily staying with friends but needs to move out soon as they are currently selling their house. Solving this problem is top priority, and funding from supporters will open up many opportunities for Lisa.
As she is still unable to work, Lisa will also need funds to purchase food, necessities, and to receive the remaining treatments that she needs which include (but are not limited to):
-extensive work with a biological dentist to address toxic dental infection and mercury exposure. We have received 2 different quotes for the work that would be involved, both topping $10,000. It is evident that Lisa’s immune system will continue to work in overdrive until these infections are taken care of, so this is a top priority. One of the dentists who can do the work is quite a distance away, therefore, she will need to travel to the clinic and stay for 3 nights with a companion in a toxin-free hotel.
-surgery to rectify a tongue-tie that could potentially be one of the root causes of her constant and debilitating head and neck pain. She has had an assessment by a tongue-tie expert, and the surgery will cost $2,000.
-possibly Regenexx therapy to address and relieve the nerve compression and stenosis that is also causing her debilitating and constant pain.
-supplements that will address remaining toxicity, inflammation, and metabolic dysfunction. Although Lisa and Carla have tried to simplify the volume of supplements she will use in her recovery, they remain quite costly.
-ongoing support such as craniosacral therapy, trauma release, cold laser therapy, massage, and chiropractic care to address her dysregulated limbic system and complete her healing.
Lisa may also need to hire a care aid if funding allows.
It is apparent that we have a way to go yet until Lisa is fully recovered, so we are asking for help
Forwarded from 🔊 Aimé • Public Blog Space (Aimé Lilithe)
from Lisa’s current and new supporters to help her continue on this journey. Healing is never easy and is often not fast, but she has every chance at recovery with the support of her friends, family, and medical team.
Regardless of what we decide to be the best course of action, Carla will be working with Lisa to plan, budget, and execute her healing plan until she is well.
Although Lisa is apprehensive and scared as any of us would be, she is also hopeful and very grateful to have this opportunity for recovery. And she will recover. We are so grateful for you, Lisa’s friends and supporters, who have been a bright light during this difficult time and for helping us to keep going. Thank you!
Please continue to share this!
Help spread the word!
Regardless of what we decide to be the best course of action, Carla will be working with Lisa to plan, budget, and execute her healing plan until she is well.
Although Lisa is apprehensive and scared as any of us would be, she is also hopeful and very grateful to have this opportunity for recovery. And she will recover. We are so grateful for you, Lisa’s friends and supporters, who have been a bright light during this difficult time and for helping us to keep going. Thank you!
Please continue to share this!
Help spread the word!